Royal Navy Fire Fighter says “Thank you !”

Posted by lisa on October 10, 2013 in Fund Raising, News, Uncategorized tagged with

Adam Beasley is a Royal Naval Firefighter who suffered from Perthes disease as a child and who has an ambition to help children currently suffering from this condition, he set himself the task of cycling non-stop for 24 hours both to raise funds and to raise awareness of Perthes disease.

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SUMMER GET TOGETHER

Posted by lisa on August 08, 2013 in Events tagged with

Our Summer Get-together held at The Holiday Inn in Guildford was a great success, families who attended from all of the UK listened to talks by Robert Hart (sibling of someone with Perthes disease) who talked about the day to day life of living with a Perthes sufferer and how the whole family had been affected, he also spoke about how proud he was of his brother for all his achievements.

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I Cycled La Ronde du Marmotte Sportive for PERTHES ASSOCIATION because they helped my parents when I was a child

Posted by lisa on June 06, 2013 in Uncategorized tagged with

Carl Andrews is one of the unlucky ones, he had Perthes disease as a child but he has not fared well and although he has had two osteotomies, (one as a child and one aged 19) three years ago he had a procedure known as debridement of the femoral head. Carl is in constant pain and has regular cortisone injections to keep him going and takes pain killers every day - but that just spurs him on to spreading the word about Perthes disease at every opportunity. Carl is going to take part in a gruelling cycle ride to raise awareness of this little known condition that affects 1 child in 20,000.

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NEW RESEARCH GIVES HOPE FOR FAMILIES

Posted by lisa on March 03, 2013 in Uncategorized tagged with

The UK children’s charity Action Medical Research is funding research at the University of Hull to help develop screening guidelines to identify those at risk of getting the disease. Investigations into possible treatments are also underway.

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Oliver’s Story

Posted by lisa on March 03, 2013 in Uncategorized tagged with

The story of a young boy whose determination to not let Perthes disease get him down, made him a Star.

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Paris to Geneva – Matthew Rides again for Perthes!

Posted by lisa on March 03, 2013 in Uncategorized tagged with

I am sure you will all remember Matthew Felstead who cycled from London to Paris last year and who raised £2,500 for Perthes Association after paying out £1,600 himself just to take part ! Well Matthew is off on his travels again this time from Paris to Geneva ! The link for his Just Giving page is below, please support him even if it's only £1 - it all adds up! Many Thanks !   http://www.justgiving.com/Matthew-Felstead1  

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