SUMMER GET-TOGETHER

Posted by lisa on July 07, 2014 in Uncategorized tagged with

This summer's get together and party for Perthes children and their families. will be held at Guildford at The Holiday Inn , parents who wish to stay at the Hotel will be offered a discount . Due to fire regulations, places are limited to 150 people, therefore first paid first served will apply, we cannot reserve places without payment as this would be unfair.   To be held on : Sunday 13th July. - 2pm – 5pm To be held at: The Holiday Inn Guildford Our Entertainer will be - Bonnie and Dan from : http://www.bubbleshows.co.uk   There will be three speakers, T

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Carl’s Trilogy of Cycling Events

Posted by lisa on May 05, 2014 in Uncategorized tagged with

I am cycling a trilogy of cycling events for PERTHES ASSOCIATION because They helped my parents when I was a child : I will be doing the following events to raise money for this wonderful charity:-

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Stuart’s 15,000ft Tandem Parachute Jump

Posted by lisa on May 05, 2014 in Uncategorized tagged with

On 16th February Stuart Robinson together with 5 of his friends took part in a 15,000ft Tandem skydive for PERTHES ASSOCIATION because his son Beau has Perthes disease, we want to thank him for helping to raise awareness as well as raising almost £1000 in funds to help research.

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Royal Navy Fire Fighter says “Thank you !”

Posted by lisa on October 10, 2013 in Fund Raising, News, Uncategorized tagged with

Adam Beasley is a Royal Naval Firefighter who suffered from Perthes disease as a child and who has an ambition to help children currently suffering from this condition, he set himself the task of cycling non-stop for 24 hours both to raise funds and to raise awareness of Perthes disease.

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SUMMER GET TOGETHER

Posted by lisa on August 08, 2013 in Events tagged with

Our Summer Get-together held at The Holiday Inn in Guildford was a great success, families who attended from all of the UK listened to talks by Robert Hart (sibling of someone with Perthes disease) who talked about the day to day life of living with a Perthes sufferer and how the whole family had been affected, he also spoke about how proud he was of his brother for all his achievements.

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NEW RESEARCH GIVES HOPE FOR FAMILIES

Posted by lisa on March 03, 2013 in Uncategorized tagged with

The UK children’s charity Action Medical Research is funding research at the University of Hull to help develop screening guidelines to identify those at risk of getting the disease. Investigations into possible treatments are also underway.

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