We Are a Voluntary Organisation!

Fund raising events have enabled the association to buy such things as Major buggies, wheelchairs and moveable seats, which are loaned entirely free to members. They have also bought almost 100 hand propelled trikes which they loan to children in splints or plaster, to enable them to play with their friends. Currently they are raising money to buy more of these and also additional reclining wheelchairs for children to use whilst in an immobilising plaster following surgery. They have a long-term aim to raise sufficient funds to be able to contribute to research programmes into the cause and possible cure of Perthes' disease and other forms of osteochondritis.

A contact register has been established of families / members who are willing to speak to new members in their locality and is run within the guide lines of the Data Protection Act .

Membership of the Perthes Association entitles you to a free Handbook and Layman’s Guide to Osteochondritis, plus you will receive 4 newsletters on a quarterly basis along with access to the equipment library and helpline.

If you do not wish to join the Perthes Association but require further information the Handbook and Layman’s Guide are currently available at £7.50 (Incl. P&P). Adults suffering from Multiple Epiphyseal Dysplasia or from long term effects of Perthes or other forms of osteochondritis are welcome members of the Association.

We currently have a database which enables us to put them in touch with others who are experiencing difficulties related to their condition. We support claims for benefits where appropriate and are currently compiling a booklet specifically for adults.