Hi, This is our story
Our daughter Tilly complained of pain in her knee and walked with a limp she also was having trouble getting out of a chair as was very stiff and seem to get stuck.
We took her to the doctors, this was when she was 5 in 2007,where our GP sent us for test at High Wycombe hospital where they diagnosed her with perthes in her right hip.We were devistated
as you can imagine.It was very tough trying to keep a very close eye on Tilly saying what she could or couldn't do which came with many tears not just from pain.
In febuary 2008,Tilly aged 6 then, was admitted into stoke mandeville hospital for an operation an osteotomy which was a shelf support,using bone from her pelvis to try to limit the amount of damage to the femur head.
A year later things started picking up,her femur bone had strated to harden, even though very flat Tilly still have some movement, though having trouble to lift her leg over a bike is a struggle though at least on the mend able to walk further and mild running, stiil being careful though.
Tilly now 7 began to walk with a servere limp again!
with which we went back to the consultant 6 months early to be told after an xray that Tilly sadly has now got perthes in her left hip as well
.I feel so sorry for her whilst she was on the mend for her right she was able to join pro mai <mild matial arts> passing her second belt on the sunday to be told on the wednesday she can no longer go this being something she loved.
It seems like everything she really enjoys has been taking away from her.
Tilly 5 weeks ago had the same operation as her right hip, she doing well, still smiling!
bless her keeping everyone going with her braveness.She has started violin lessons which can not be 'took away' from her,at least we have found something that she enjoys which won't effect her perthes at all.The perthes in her left hip is taking a very slow process. This is causing her pain in right hip again.
Tilly enjoys swimming which really helps her with stiffness which i would highly reccommend.
Well back to 6 week appointments again, will keep you posted!
Tilly is the most bravest happiest little girl i have ever known!!!!!!!!
Always smiling, very thoughtful. Keeping everyone going.
I wish some good luck would come for her fast!
Claire Winson
