Family Cycle Challenge – 18th September 2016

Posted by lisa on May 05, 2016 in Events, Fund Raising tagged with

Roll up, roll up. Announcing Perthes Association family cycle challenge. 18th September at Markeaton Park in Derby. Carl Andrews has managed to source (incredibly cheaply) and hire of a fleet of adapted bikes – including hand cranks, side-by-side tandem, wheelchair bikes, trikes and a quad for people to use.

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EXCERPT FROM THE LATEST NEWSLETTER

Posted by lisa on May 05, 2016 in Uncategorized tagged with

Dear Members and friends, Firstly, I would like to say a big thank you all for your continued support – without you there would be no Perthes Association and no support network, for the many families whose lives are affected by Perthes disease. It has been a tough year financially, with the number of new cases referred to us still growing and the number of new charities springing up, making the competition for funding even harder for a charity like ours.

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M.E.D. Sufferer to take part in the Boston Marathon

Posted by lisa on March 03, 2016 in Uncategorized tagged with

Pete Hopkins writes : " Support me as I run the Boston Marathon, the Bone Frog Challenge, and multiple Spartan Races to raise money for a cause that is near and dear to my heart! Back in 1994, I was diagnosed with multiple epiphyseal dysplasia and soon after had undergone a bilateral femoral osteotomies to correct my gait alignment. Afterwards and throughout my youth, I always felt like I was at a loss, physically, unable to participate in the same activities as my peers. In the latter years of high school, I'd wrestle, kick box, pole vault, etc.. building the confidence I lost. After s

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Perthes Association Get Together October 2015

Posted by lisa on June 06, 2015 in Events, General tagged with

Perthes children and their families gathered together at The Holiday Inn Guildford on Saturday 24th October 2015. Our Main Speaker was Mr. Daniel Perry a National Institute of Health Research Clinician Scientist, Senior Lecturer and Consultant Orthopaedic Surgeon whose speciality is Perthes disease and other paediatric hip disease. Currently leading research into Perthes disease at Liverpool University sponsored by Perthes Association. Entertainment for the children in the form of a brilliant act by Magic Carl  was excellent , and  was organised and sponsored by http://www.airtech.c

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Raise Awareness of Perthes disease with our New Mascot Bear! 26cms high and just £12.99 (including p & p)

Posted by lisa on March 03, 2015 in Uncategorized tagged with

Our Beautiful Mascot Bear stands 26cm High and is on sale now in our Store at just £12.99  including postage and packing  

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Tilly’s Story

Posted by lisa on March 03, 2015 in Uncategorized tagged with

This is Tilly's Story as told to members of the Association at the last Get-together held at Guildford.Hello my name is Tilly Winson, I’m a proud Perthes child ! I would like to tell you about my journey through Perthes disease. I am currently twelve and half years old and am at the final stages of my journey with bi-lateral Perthes disease which we had never heard of before, so mum found Perthes Association on the Internet which has been very useful.

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