Information

Helping children with Osteochondritis PERTHES ASSOCIATION is an entirely Voluntary Organisation, founded in Birmingham in 1976 and was registered as a charity in 1977; in 1991 the charity moved to Guildford in Surrey and became a National Charity. Our registered charity Number is : 326161

The Association

Aims to to aid research to find a universal treatment for children with Perthes disease and hopefully a cure. Currently we help and advise families of children suffering from Perthes disease and Associated conditions in all parts of the British Isles and overseas. Perthes disease (a potentially crippling disease of the hip) is a form of osteochondritis, which affects 5.5 per 100,000 children (mainly boys) between the ages of 2 and 15 years.

What is Perthes Disease?

Perthes disease (also known as Legg-Calve-Perthes disease, or Calve Perthes disease, or avascular necrosis) is a childhood disorder which affects the head of the femur ( the ball of the ball and socket joint of the hip). In Perthes disease the blood supply to the growth plate of the bone at the end of the femur (called the epiphysis) becomes inadequate. As a result the bone softens and breaks down (a process called necrosis).   Click here for more Information

What do we do?

PERTHES ASSOCIATION IS  A VOLUNTARY ORGANISATION that supports children who suffer from Perthes disease and Associated conditions. For many years we have supplied equipment for children in plaster but  as treatments change we have decided to move with the times and focus more on research in the hope that the cause of Perthes disease will be established which in turn will lead to a cure. Click here for more Information

Associated Conditions

  • MULTIPLE EPIPHYSEAL DYSPLASIA
  • A DIFFERENTIAL DIAGNOSIS TO PERTHES DISEASE

Multiple Epiphyseal Dysplasia, usually simply called M.E.D. is an uncommon developmental condition. It was first described by Fairbanks in 1935 and is known to affect 11 persons per million. The multiple Epiphyseal dysplasias have been classified into a mild ribbing variety, in which stature is near normal and hip involvement is the major abnormality, and the more typical Fairbanks type (described by Fairbanks in 1947) which is more severe, often resulting in short stature with multiple Epiphyseal involvement. Click here for more information.

Contacting Us

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Please note

Perthes Association is for Perthes sufferers and their parents. It is not associated with any other group using a similar name. Perthes association literature is copyright and may be printed for your personal use, but should not be copied in whole or part for distribution without the consent of the Perthes association.