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Physical activity during different stages of Perthes
Ruti RousPostJanuary 24, 2019, 13:04
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January 24, 2019, 11:38
Normal topicPhysical activity during different stages of Perthes

Hi everyone,

my 5 year old daughter has just been diagnosed with Perthes and I'm loosing my mind over different levels of so called conservative approach. While our orthopedic specialist assured us it is ok for her to walk on short distances without crutches, our physiotherapist warned us she should go strait on wheelchair for the next 4 years and she should not do a single step on the affected leg (arguing that each step can cause additional damage to the femur, meaning the bone will need more time to heal and the need for surgical treatment is more likely).

I've found plenty articles on the web supporting each theory and it's driving me crazy, cause I really don't want to cause my child even more pain and damage.

Please help me with your experiences. Where your children aloud to walk and managed to get over perthes without surgery? Does anybody know for clinical study that has proposed the change of treatment from wheelchair to "it ok if they walk"? Does anybody know what where the arguments (did they discovered short walks do not cause damage to the femoral head, or did they only decided that preserving leg muscles outweighs the potential damage toe femoral head)?

And one more question - what other sports (apart from swimming and cycling) are aloud? What where you advised about horse riding, top-rope climbing (no fall), etc.?

Thank you very much it is so good to know we're not alone!

And of course great courage to all the little fighters out there!

PS: My daughter is 5, she is very light weighted (16kg), and we are told to be in very early stage of the disease (the femoral head is slightly flattened in comparison with the right one).

lisaPostMarch 28, 2019, 10:49
lisa
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September 7, 2011, 13:46
Normal topicPhysical activity during different stages of Perthes

Your physiotherapist is wrong to tell you this. There is absolutely no evidence to say that non weight-bearing has any long term effect or benefit but there is plenty of evidence to show that children who are restricted in this way, can develop psychological problems which are much harder to deal with than Perthes disease. I would suggest you join the BOSS study http://www.boss.surgery to learn more about research into the various ways of managing Perthes, but let me reassure you that your child being allowed to walk and play will not stop the bone from healing, the only restriction you need to have is any high impact or contact sport,

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