YOUR HELP IS NEEDED ! PLEASE TAKE PART IN THIS SURVEY.

Posted by lisa on January 01, 2018 in Uncategorized tagged with

This is the questionnaire that will drive the research agenda in kids orthopaedics over the next 10 years. I really want Perthes to be well represented! NIHR will drive money to whichever questions are prioritised! The voice of Parents is more important than doctors. Perthes will be fighting against all other conditions of children’s lower limbs. I want Parents to throw in any questions that they may have. This could raise far more money for Perthes’ disease research than anything else - so please help! https://www.ndorms.ox.ac.uk/research-groups/paediatric-lower-limb-surgery

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THE BOSS STUDY

Posted by lisa on November 11, 2017 in Uncategorized tagged with

BOSS is a nationwide reporting mechanism to determine the epidemiology and outcomes in rare orthopaedic diseases. BOSS is based on other successful reporting systems in obstetrics (UKOSS) and Paediatric Surgery (BAPS-CASS.)  we need more families to sign up for this in order for researchers to get a clear picture and results that have meaning.  www.Boss.surgery/

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STUDY NEEDS MORE INPUT FROM PROFESSIONALS AND FROM PARENTS

Posted by lisa on November 11, 2017 in Uncategorized tagged with

We are desperate for more families to be come actively involved in this, please give it some thought and help out if you can https://www.studies.surgery/top

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Mark’s London to Brighton Cycle Ride

Posted by lisa on August 08, 2017 in Uncategorized tagged with

Mark's Justgiving Page Mark's page I am cycling from London to Brighton for PERTHES ASSOCIATION because Life is too short not to push ourselves!! Event: DIFC London to Brighton Cycle 2017, 17 Sep 2017 Start fundraising for this event Mark's Story Anyone that knows me or my medical history knows that since the age of 8 life has not been plain sailing due to the development of Perthes disease in my right hip. In short - I have decided to push myself harder than I ever have done before in my life and pedal my fat arse from London to Bri

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PEDAL THROUGH PERTHES

Posted by lisa on August 08, 2017 in Events, General, Stories, Uncategorized tagged with

  Pedal Through Perthes (Perthes Association UK)   Raising funds and awareness for Perthes for PERTHES ASSOCIATION because Jack was diagnosed age 7 in Nov 2016. Event: Pedal Through Perthes, 11 Nov 2017 PERTHES ASSOCIATION We support families affected by Perthes to give them hope for the future Charity Registration No. 326161 Story Thanks for taking the time to visit my JustGiving page. Jack, now 8, was diagnosed with Perthes Disease when he was 7 years old. Jack was very active, playing many sports, e

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BRAMPTON RACEWAY 13TH JULY 2017 FUNDRAISER FOR PERTHES ASSOCIATION

Posted by lisa on April 04, 2017 in Uncategorized tagged with